Thank you for visiting Gavinliveslife.com in support of our husband, father, son, brother, cousin, and friend, Gavin Lanigan. We hope you’ll spend some time here getting to know Gavin, his journey, and the inspiring, effective way he is approaching life with Motor Neurone Disease/ALS. Visiting the site provides Gavin, wife Lorraine, and twin children Conor and Isla, together with the entire family tremendous support as we all continue on this journey.
In 2013, at the age of 42, Gavin was diagnosed with Motor Neurone Disease (MND/ALS). We knew nothing of MND when he was diagnosed. Like many people we thought it was a rare disease that few people suffered from however there are five thousand people in the UK living with MND. Four hundred people in Scotland.
When being diagnosed, Gavin concluded that the communication and support structure is geared towards end-of-life care, and you may as well just accept it. However this is not Gavin, so he set about developing the “Gavinliveslife“ approach and is proving it doesn’t have to be that way. He is determined to fight the disease and help himself and importantly others and their families that find themselves in a similar situation to him.
Gavin’s website www.gavinliveslife.com is geared towards helping people in search of information on living well with the disease. Gavin is an advocate of using Laughter, Hope and a Positive Attitude towards managing the condition. He is delighted to share his learnings around mindset, healthy eating, exercise equipment, research and also new ground breaking computing technology which is making a huge difference to Gavin’s life.
In terms of research, there are no MND/ALS clinical trials in Scotland, however, Gavin discovered a pharmaceutical company in England conducting a non-NHS funded drug trial. He travels to London on a monthly basis for rigorous testing and after 6 months, the results of the trial are very encouraging.
Via his website, Gavin now wishes to establish a fund that you can donate to that can assist in the future funding of his medication, while also contributing to the Euan MacDonald Centre in Edinburgh to fast track ALS/MND research. We have provided an area on the site to allow you to make a contribution. Together with the worldwide phenomenal #IceBucketChallenge we believe the time is right to raise awareness and carry on the mission of finding a treatment and cure for Motor Neurone Disease/ALS.
Gavin, his entire family, and the medical profession believe strongly that his approach is really helping. He is an inspiration to all who meet him, and we his family are in awe of his courage and strength of character.
Thank you for your tremendous support. The love, the simple things, the prayers, the kind thoughts and actions, they all make this journey much much easier.
The Lanigan family